I keep writing this and my phone keeps eating it. Here we go, third try.
Here's what we learned today:
1) Ike will not outgrow the stenosis. It is a grade 3 stenosis with lateral shelving. His airway is in the shape of a very narrow hourglass. It's definitely surgical. This sounds bad, but it's not. This is what we suspected all along and we are thrilled the fancypants Cinci doctors are on board.
2) Ike has lung damage. Both from being a preemie and from possible chronic aspirations. Both of these things are news to us, and not welcome news.
3) his airway can't be repaired until we figure out what is damaging his lungs. We have to fix whatever that is and then give his lungs time to heal. This means we will have to come back here and do all of this again before he can have the reconstruction. We don't know when that will be.
4) tomorrow morning, he is having yet another swallow test to see what exactly he's aspirating that's causing the lung damage. Saliva? Food? Reflux?
5) next week the cinci docs will call us with more info as test results come in. Possibly then we'll get a plan of action.
6) Ike is OK tonight. His arms are boarded at the elbows to prevent him from removing his impedance probe, so he's not too happy about that.
8) encouraged and discouraged at the same time. Our road just got a little twistier, our journey a little longer. It's never as easy as you want it to be.